Friday, October 28, 2011

What is Sensory Processing Disorder? Or why is Noah so "hitty"?


Anyone who has spent time around my little Noah has experienced him throwing himself on you, biting or hitting you.  You have probably seen his odd choice in toys: sand, dried beans, anything he can fill and dump (and throw).  These are more than just naughty or quirky behavior.  Noah has sensory processing disorder in addition to his other diagnosis.

 Most children with Sensory Processing Disorder are sensory avoiders, the kids who won't walk barefoot on grass or eat food with a certain texture or can't stand the seam on their socks.  Noah experiences some of that, but he is mostly at the opposite end of the spectrum, he craves sensations.  This is a disorder that is difficult to explain, below is excerpts of an article by Beth Arky of the Child Mind Institute that I think does a pretty good job explaining sensory processing disorder.  (here is a link to the entire article http://www.childmind.org/en/posts/articles/2011-10-26-sensory-processing-issues-explained)


At first, SPD parent blogger Hartley Steiner couldn't understand why her son Gabriel's psychologist suggested that he had SPD; after all, he didn't fit the avoidance profile most people think of when they hear "sensory issues"—kids who cover their ears or won't try new foods. As she wrote in her blog, Gabriel was "fine with loud noises, loved water, mud, hot salsa," Steiner says. "He would climb to the tippity top of a play structure—and stand on top of it. No, my kid was not at all adverse to sensory stimuli—as a matter of fact, he couldn't get enough."

It took a year, and reading Carol Stock Kranowitz's seminal book, The Out-of-Sync Child, for Steiner to realize there are two types of kids with SPD: sensory seekers and sensory avoiders. Those like Gabriel, who seek input, "are often considered 'behavior problems,' 'hyperactive,' 'difficult,' 'stubborn,' 'coddled.' Many of us parents have been blamed, told our kids need more discipline, or that they are 'in need of a good spanking.'" Those who perceive things too intensely are avoiders; this can translate into refusing to brush their teeth or have their faces painted. To make things even more complicated, kids can be both seekers and avoiders and have both proprioceptive and vestibular challenges, along with issues relating to the traditional five senses.
Proprioceptive receptors are located in the joints and ligaments, allowing for motor control and posture. The proprioceptive system tells the brain where the body is in relation to other objects and how to move. Those who are hyposensitive crave input; they love jumping, bumping and crashing activities, as well as deep pressure such as that provided by tight bear hugs. If they're hypersensitive, they have difficulty understanding where their body is in relation to other objects and may bump into things and appear clumsy; because they have trouble sensing the amount of force they're applying, they may rip the paper when erasing, pinch too hard or slam objects down.
The vestibular receptors, located in the inner ear; tell the brain where the body is in space by providing the information related to movement and head position. These are key elements of balance and coordination, among other things. Those with hyposensitivity are in constant motion; crave fast, spinning and/or intense movement, and love being tossed in the air and jumping on furniture and trampolines. Those who are hypersensitive may be fearful of activities that require good balance, including climbing on playground equipment, riding a bike, or balancing on one foot, especially with eyes closed. They, too, may appear clumsy.

Peske sums up the way sensory issues can affect kids this way: "If you're a child who is oversensitive to certain sensations, you are not only likely to be anxious or irritable, even angry or fearful, you're likely to be called 'picky' and 'oversensitive.' If you rush away because you're anxious or you're over-stimulated and not using your executive function well because your body has such a powerful need to get away, you're 'impulsive.' If you have trouble with planning and executing your movements due to poor body awareness and poor organization in the motor areas of the brain, you're 'clumsy.' Because you're distracted by your sensory issues and trying to make sense of it all, you may be developmentally delayed in some ways, making you a bit 'immature' or young for your age."

See, Noah isn't a jerk!  Noah's sensory issues are his most exasperating behavior for me.  His behavior gets defined as aggressive which makes spending time with peers extremely difficult.  Time with peers would be incredibly helpful for him, but he is too "hitty" for other kids to want to play with him.  Hopefully with continued therapy and time at school these sensory issues will lessen or at least manifest themselves in another, more socially acceptable, way.  Unfortunately this isn't an issue with a quick fix.  But we will keep working on it.  Our outings are one way we hope will help him learn to control his impulses and learn to manage himself in public.  Wish us luck!

Saturday, October 22, 2011

Adventure #13: Giant SpongeBob Lego Build

All this weekend at Washington Square Mall, the Lego Store is hosting a free mega building event. http://www.shopwashingtonsquare.com/events/Details/40661  If you have ever been to downtown Disney, the Lego Store at that location has giant Lego creations of Darth Vadar, animals, and the like.  Our local Lego Store is getting their own 8 feet tall Sponge Bob Square Pants and you can help.

As the kids had no school on Friday, we headed down to participate.  Now this isn't really Noah's thing, he lacks the coordination to build with Legos.   He'd really rather just throw them.  But Owen, at 7 years old is a Lego fiend, so this was really for him.

This free event is really well organized with several tables set up by the food court (where Santa will be in about a month).  At each station are different colored bricks and Lego personnel walk around to instruct the kids how to turn their small bricks into a giant brick to assist in building Sponge Bob.  Geoff and Owen got to building while Noah and I cruised the mall.

Most stores, although they may technically meet ADA standards, are way too tight for me to get Noah through with his stroller.  Build-A-Bear Workshop is a nice exception.  Noah does love a stuffed animal, so we walked around in there.  I kept petting his cheek with different stuffed animals for which I was rewarded with sweet smiles.  We then found some pink monkeys that he decided he needed 3 to join him in his stroller. Like he literally kept pointing and grunting until he was at 3 then satisfied, he allowed me to move on.  We then found cute little "Woodstock" dolls from Peanuts that sang the Peanuts theme song.  Noah wanted 2, but when I showed him Charlie Brown he gave all the other toys back to have Charlie.  So decision made we paid and decided to walk around a little more.

When did Washington Square Mall become a Middle Eastern Bazaar?  All the kiosk shop keeps are shouting  at me to try their products and a Shakira look alike nearly chased me down the mall.  Weird and unpleasant.  We walked around for a few more minutes then went to rejoin Owen and Geoff.

Owen proudly holding his certificate for participating in a Master Lego Build was very happy with his contribution to the giant Sponge Bob.  We got some lunch.  Owen and I some Mexican, Geoff Japanese, and Noah an odd mishmash of tater tots, yakisoba, and cinnamon crustos (the worst possible name for a food item).  We finished up and headed home.  Now we just need to go back on Monday to see the finished Sponge Bob!

Thursday, October 20, 2011

Adventure #12: The pumpkin patch

We are finally all healthy at the same time and ready to go on an outing!  As Halloween approaches a trip to the pumpkin patch was in dire need.  We headed back to LakeView Farms http://www.thelakeviewfarms.com/.  LakeView Farms is located in North Plains and I think it is the only thing located in North Plains besides the McDonald's by the freeway.  We went there 2 years before with friends and it was overwhelming.  Noah was out of control and it was insanely crowded.  We went by ourselves and mid week this year to help Noah hopefully have an easier time.

When you get there you drive down a long dirt road to the gift shop.  Right next to the gift shop is a petting zoo with some pigs, goats, bunnies and cats (?), literally kittens in a cage, don't know why.  After purchasing our train tickets we headed over to take a ride on the rails.  I didn't know how Noah would do.  When we came two years ago he spent the train ride punching me in the head.  This year we got into our seat and Noah kept trying to climb out, not a good start.  But after the train got going he sat next to me with a sweet little smile on his face.  It made me think a trip to Disneyland may be in our future!  But really everything makes me (or my sisters) think a trip to Disneyland should be in our future.

We disembarked at the pumpkin field and Owen proceeded to grab a wheel barrow and load it up with pumpkins.  Geoff leaned over to me and asked, "are we getting all those?"  I had to reply, "no, we are getting one but it makes him happy to load up the wheel barrow."  Noah, true to form, refused to walk on the uneven ground of the field.  So Geoff and I alternated carrying his chubby self until he decided to climb into a wheel barrow and got big brother to wheel him around.

LakeView Farms has a train and a boat you can take.  We have never taken the boat ride.  Owen is a little nervous of the boat and Noah has no understanding of personal safety and a love of water that just reeked of a bad combination.  We took the train back.  The train engineer, who was a very nice man, asked Owen why he didn't want to take the boat.  He then asked Owen what he was going to be for Halloween.  Owen answered a pirate and I thought about the irony of a pirate who hates boats.

We paid for our Cinderella pumpkin, which Owen told me was definitely not a Cinderella pumpkin and stared at the animals before heading to our car.  Nice little outing to the pumpkin patch.  Noah was calm and happy, Owen got to go to his favorite pumpkin patch and we just barely dodged the rain.  Perfect.  

Monday, October 17, 2011

10 Things I would love everyone who knows me and Noah to know...

I didn't write this but I wish I did.   The author (found at the blog below) called this post "10 Things my Autistic Children Wished You Knew".  I can't honestly tell you if Noah cares if you know this stuff or not, but I would love for everyone who knows me, my family, and my sweet Noah to know this.

http://lostandtired.com/about-me/
Written by me, Rob Gorski (Lost and Tired) and dedicated to my amazingly beautiful children. 
1. I’m sorry I have fits but I’m not a spoiled brat. I’m just so much younger on the inside than I am on the outside.
2. I’m easily overwhelmed because I see and hear everything. I hear the lights hum and clock tick. Everything is so loud it makes my head hurt all the time and my eyes hurt from all the bright lights.
3. I’m not stupid, I’m actually very smart. I just don’t learn the way you want me to. Please learn about Autism so you know how to help me better understand what you are trying to teach.
4. Please don’t be mad at mommy and daddy because we don’t come over for holidays or birthdays. They really want to go but I don’t do well at another person’s house. It’s too overwhelming for me and they know that. They don’t go because they love me, NOT because they don’t like you.
5. Please have patience with me. I try really hard to make good decisions but I can be very impulsive at times.
6. Yes, I have Autism but that doesn’t mean I’m less of a person because of it. If anything, I’m actually more of a person in spite of it.
7. My house might be messy sometimes. It’s because my mommy and daddy spend all their time trying to find new ways to help me or teach my brother to talk..
8. Just because I can’t talk doesn’t mean I don’t understand what you are saying. My feelings can be hurt just like yours.
9. I wish my mommy and daddy knew how much I love them. I have a really hard time with emotions and I don’t always like to be touched. But I love them more than anything in the world, even more then my Lego’s.
10. I know I can be frustrating but don’t tell me I won’t amount to anything because I have Autism. If you love and support me I WILL do great things in my life in spite of my challenges.

Saturday, October 15, 2011

A Pause in Adventures...

We have had to take a little break from our adventures for a couple of reasons.  All of us came down with that nasty cold, that I have taken to calling the Black Plague.  We are heading into week 4 and still are all coughing with sore throats and head congestion.  No fun at all.

Last Saturday, I was at the beach for my annual Beach Bunco girls' weekend and Geoff had planed a fun weekend of visits with Grandma and going to the toy store with the boys.  The first hitch to their plan was that both boys were borderline sick.  Owen had stayed home from school Thursday and Friday and Noah seemed to be coming down with the cold too.  Then Saturday morning Noah experienced a huge seizure.  This seizure started out like his regular seizures and then after about 4 minutes Noah went completely limp and started to struggle to breathe.  Geoff gave him emergency medication and after another minute the seizure ceased and Noah went to sleep.  The combination of the medication, the seizure and the cold wiped Noah out for days.  He couldn't walk for a day afterward and missed Monday and Tuesday at school.

Noah's seizure is a reminder that all of our plans have to be tentative.  We never know when Noah will have what we call "bad days" and we need to spend time at home with him.  Those days are an odd combination of fear and boredom where you worry about Noah and sit next to him watching endless hours of preschool television.

But we will be back, in a week or so...

Sunday, October 2, 2011

Adventure #11: Apple Orchard

In order to enjoy a gorgeous fall weekend day, we decided to visit an apple farm!  One of the great things about living very close to a rural area is the access to farm stands, pumpkin patches, Christmas tree farms, and all that good, fun stuff.  The one downside, it occasionally smells a little like cows outside.  And by a little, I mean a lot.  


We drove about 5 minutes from our house to Oregon Heritage Farms.  If you have driven down Scholls Ferry Road you may have noticed their cute rhyming signs that lead you to their front gate.  This farm is not a u-pick, but picking the fruit sounds suspiciously like work, so I am great with just purchasing at their quaint store.

We have a routine when we go, explore the grounds, then hit the store.  We start with the animals, goats and pigs are live in pens right next to their field.  And, if you head to the far back fence, there are some secret horses.  No one seems to notice these beauties, but we head over there every time we go.  They usually will let Noah pet their noses.

After our animal visit, we climb into the hay ride wagon!  Then we go through the hay bale maze.   Owen loves the hay bale maze, which as you can see from the photos is intended for children.  Noah doesn't like walking around the grounds too much.  Uneven ground makes him feel especially unsteady.

We finish up in front and I head to the store with Noah while Geoff takes Owen to the bouncy apple.  If you don't mind being crammed into an apple shaped bounce house with billion kids that you have seen no where else on the farm grounds, then this is for you.  It is a little to much for Noah and I so we gather serveral different apple varieties to purchase.  We also browse the cute store with other produce and crafts.   We grab the kids honey sticks, bag up our apples and head home.  Fun Autumn adventure for just the price of some apples!


If you go:  2 apple farms that are close enough to each other that you can easily do both in one outing.  They both have upcoming festivals, but are also open each weekend for impromptu farm fun.





Apple Fest at Oregon Heritage Farms -http://www.oregonheritagefarm.com/
Sunday, October 9th
22801 SW Scholls Ferry Road, Hillsboro, Oregon 97123. Phone: 503-628-2775. We will have Good Old Country Music, Face painting, Hay Rides and other activities to help raise funds for the Aloha and Southridge High School Ski Teams. 



Heirloom Apple Festival at Smith Berry Barn -http://www.smithberrybarn.com/scripts/openExtra.asp?extra=6
Saturday, October 16th and Sunday October 17th
24500 SW Scholls Ferry Road, Hillsboro, Oregon, 97123 Phone: 503-628-2172. Many other fruits, vegetables and nuts, honey, jam, hayrides, country store open daily thru Dec. 23, & more. Local crafts, antiques, gifts, and much more. We also feature herbs, perennials, and hanging baskets.  March - Dec. 23, Monday to Saturday. 9 am to 7pm, Sunday 10am-5pm ,